Category: The Way of Saint Thorlak

  • Dr. Hahn: It’s not funny

    Dr. Hahn: It’s not funny

    by Aimee O’Connell

     

    I have recently become aware of a book just published, Autism and Holy Orders, touted as a long-overdue resource for helping autistic men navigate the process of priestly formation, ordination and service in the Church.  I could not wait to start reading… until I hit the foreword by Scott Hahn.

    Scott Hahn’s name always brings a smile to my face.  I have an entire shelf devoted to his books.  I have attended his conferences and speaking engagements.  I relish with guilty pleasure every single Dad joke he has made and refer many, many people to his writing, as I feel he has a gift in being able to explain Church doctrine in a way that is memorable, relevant and relatable to anyone.  I don’t know him personally, but it’s no exaggeration to say he is a part of my Catholic fabric.

    The foreword made me gasp.

    In an instant, this well respected, well recognized, NON AUTISTIC writer / speaker / scholar, to whom so many look for guidance and encouragement, dismissed the condition of being autistic as a fad, a marketing ploy, a source of confusion.  His flippant tone made me want to shrink, mask, camouflage, hide.  If he said this in one of his public talks, any autistic person in the crowd would wish to become instantly invisible.

    He goes on to qualify his thoughts along the lines of some of his best and brightest students have had autism, and it pains him to see them suffer needlessly from a lack of understanding.  His departure from Dad jokes to full-on irony hit me like a hard smack in the face, and I’m still not laughing.

    The rest of the book, I’m sad to say, followed suit.  You can read my review here.  On the one hand, it’s a consolation to know that a book like this has a very narrow target audience, so Dr. Hahn’s insensitivity won’t necessarily be felt by as many people as it might if he wrote this in a more mainstream book.  On the other hand, how many autistic people know what sort of attitude Dr. Hahn holds toward us, and perpetuates – knowingly or unknowingly – through his example?

    Certainly, Dr. Hahn is entitled to believe and feel whatever he does.  It is not my place to police his comments.  However, it is within bounds to remind everyone who is not autistic that autism is no picnic.  We aren’t broken, yet people still look at us that way.  Alexithymia and sensory anxiety still make it very difficult for us to feel we are “enough” in the eyes of God, let alone the eyes of the Church.  Our intellect may know that God loves us as we are, but our bodies send signals of constant doubt which we have to consciously recognize and counteract if we want to maintain any kind of spiritual life.  It is a thousand times worse when our community sends us signals that feed this doubt (… such as when a renowned Catholic speaker belittles autism as a fad).  And, it’s amazing to see that even the people who consider autism a disability still speak about it as though they know everything about it, yet have zero knowledge of what it’s like from the inside, or any seeming desire to truly listen to those of us who talk openly about it it (… especially if they so quickly dismiss that as attention-seeking).

    Dr. Hahn: It’s not funny.  I’m not laughing.  I pray that you may grow in compassion, offering Jesus’ prayer on your behalf: “Father, forgive him; he does not know what he is doing.”

     

     

  • Three Simple and Meaningful Ways for Parishes and Churches to Promote Autism Awareness in April (And Beyond)

    (Note – the graphic is designed primarily for Catholic viewers and readers, but the text here has been adjusted to apply more universally to any Christian worship community. Feel free to share in your own circles!)

    Three Simple and Meaningful Ways for Parishes and Churches to Promote Autism Awareness in April – And Beyond!

    1. Plan one homily or sermon acknowledging God’s wisdom in creating neurodiversity: noting the role of autistic people in the Body of Christ, dispelling myths many people still have about autism, and setting the tone for the parish as a place that recognizes and cherishes its neurodiverse members – seen and unseen, heard and unheard.

     

    1. Consider offering a sensory friendly worship service as part of the regular services one weekend… then, consider how that could become a recurring option throughout the year.

     

    1. Host a brainstorming session for autistic people in the church, asking what would make it easier to participate in church events, sacraments, leadership and ministry. Plan this so that input can be received in writing or pre-recorded as well as in person, to include input from non-speaking persons.

     

  • How can we re-form “awareness”?

    Here we are at another April and countless hashtags promoting autism awareness, acceptance and affirmation.  The non-autistic world is most familiar with “awareness” as a positive way to remind the community of things often forgotten in the day-to-day, perhaps taken for granted or not particularly visible.  There is nothing inherently wrong with that, and, if we think about it, that concept does very much apply to autism.

    Why, then, do most autistics prefer not to promote “autism awareness”?

    Historically, public discussion of autism took place without autistic input.  For decades, autism has been looked at as a condition needing to be treated, rehabilitated, overcome and eliminated.  That mindset arose from lack of understanding of the neuropsychological reality of autism, when people considered this a mental illness that could one day be cracked and solved.  We know better now.  We know that autism is a complex interplay of hyperattuned sensory input, increased processing demands and reflexive high-alert states resulting in our brains and bodies doing exactly what humans are programmed to do under such circumstances.  Anyone who finds themselves in a state of vigilance knows what it means to pause, freeze and not speak, and to laser-lock our focus on details we feel are essential to our safety.  We know better than to take autism personally, and not to assume autistic people are being difficult because we feel entitled to preferential treatment or because we are snobby, shy or seeking attention.

    Or… do we?

    See, this is why we shouldn’t throw “awareness” out the window just yet.  Yes, absolutely, let us accept and affirm autism as well, but we really do need to reboot our cultural sense of awareness of what autism is, now that we know what it is not.

    To be blunt: Autistics know when “autism awareness” is nothing but a token nod from non-autistics who have no intention of learning what autism really is.  In those cases, yes, we do need to move into acceptance and affirmation.  But, how will non-autistics know us and understand us without first becoming truly aware of us and all that neurodiversity is?

    Perhaps one day this will evolve into “neurodiversity month.”  Or, even better, we can hope for communities who embrace us as we are so that we can happily be autistic – and they can be aware of how to support us – all twelve months of the year.