Our Stories: Connections to God Through One Another

RESOURCE LIBRARY UPDATE:

In the three months since Autism Consecrated put out the call for presentations, we have noticed something interesting.  In the same way most of what we do tends toward the personal, the human and the deeply subjective, so too has our pursuit of assembling a symposium on autism and spirituality.  Our in-person event, “Autism Through the Eyes of God” never made it past the first planning meeting, thanks to the worldwide pandemic.  Our next thought was to shift our focus to the online platform, sending out an open call for presentations which we intended to curate and post in a freely accessible resource library on our website.  The result?

Barely anything.

But in the meantime, we have engaged behind the scenes of the website in multiple conversations about autism, spirituality and disability theology which keep coming back to the same theme: OUR STORIES.

In the broad scheme of looking at autism’s belonging in the Body of Christ, there is no formula to disseminate, no paradigm to discuss, other than that of merely being human.  There is nothing more fundamental to building an inclusive spirituality than to be with each other and enter into one another’s stories.  The act of being-with invites us to draw closer through empathy and mutual vulnerability, and to experience God’s presence – first in one another, then in our midst, and then in the depths of our own heart.

Anything beyond this runs the risk of being formulaic, impersonal and not able to fit the actual needs of the person in front of us… or the needs we ourselves have.

We have known this since the inception of the Mission of Saint Thorlak and its expansion into Autism Consecrated.  We have often repeated our catch-phrase when asked what is needed in our churches to accommodate autistic people: “less programming, more relationship.”  Likewise, when I was offered the task of writing St. Thorlak’s biography, I opted to tell his story as a person rather than give another academic treatment of his achievements or attempt to parse out those aspects of historical record which suggest he had autism.  Historical fact is relevant, but in presenting St. Thorlak as a man to whom we can relate even eight hundred-plus years after his lifetime, it seemed most relevant to simply tell his story.  What good are facts without a personal reason for wanting to know them?  That same question applies to any and every person, autistic or not, who approaches our faith communities.  What good is gathering facts, diagnostic labels, symptoms, needs, accommodations – without a personal reason for wanting to know them?  Chances are, if we get to know the whole person first, some of those other facts quickly become superfluous, even if that flies in the face of what we have been told are “best practices to follow in helping autistic people.”

In truth, we hoped to gather essays and video presentations discussing these points.  It hasn’t happened.  We did, however, receive a number of submissions of personal stories, which is, frankly, exactly perfect.

For the academics among us (including myself, I confess), there are discussions and academic papers in the field of disability theology which are accessible in book format, formal presentations and websites online.  We are striving to continuously maintain and add titles of interest in our Further Reading section, to keep those conversations going.  Furthermore, we actively welcome reaching out to other like-minded groups and individuals for dialogue, discussion and input to our resources.  One such organization, the Kairos Forum, is headed by Cristina Gangemi, whose research ties directly in with the point we are making.

And so, once again, we extend to everyone here a call to contribute.

Wanted: OUR STORIES – How have we encountered God?  What helps, or hinders, us from encountering God in our daily lives, or our faith communities?  How would we describe our spiritual lives?

Format: However we best share ourselves.  Words, visual art, music, or any other channel of expression.

What to do: Send them to Autism Consecrated along with a signed Release Form (required for any submission to be posted).

We will begin posting stories soon where our Resource Library would have been.  We look forward to hearing from you!

Another Beginning

By Aimée O’Connell

Most of us associate Ash Wednesday with putting aside, going without, giving away and pruning back those distractions which have accumulated since (at least) the end of last Lent.  It seems an unusual choice for a website launch date, especially when screen use and social media are often among the first things we shave as we seek to get back to essentials.  Yet, here we are, unveiling AUTISM CONSECRATED, squarely on the first of Lent’s two strictest days of fasting and abstinence.  How so?  It is a question worth exploring, since it happens to coincide with other Ash Wednesdays of recent years.

In January of 2017, the need for spiritual support and direction specific to autism was yet unmet on a widespread basis.  I had a growing sense that the life and theology of St. Thorlak could help address this need, if only his story could be better known and understood.  I brought this to prayer by requesting a weekday Mass for this intention at my home parish.  I was offered the morning of March 1, and, in reaching for the right words to summarize my intention, I asked that the Mass be for “the mission of Saint Thorlak.”

Little did I realize that I would soon start building a website using that title, and that its launch date would coincide with the date of my Mass… and, that March 1 was also Ash Wednesday.  I marveled at how apt that St. Thorlak’s online debut coincided with the Church’s call to seek that path which will lead us closer to God.

Autistic theology is still a largely unbroken trail… meaning, it is not readily visible along the landscape, and takes significant determination to navigate.  The Mission of Saint Thorlak website has done a splendid job of commencing the journey and inviting others to travel along with us.  We have only been walking together three years, but we have made a significant start in defining this particular path, which we have come to call the Way of Saint Thorlak, and we have also made great headway in telling his story.  In fact, the opportunity to write (and eventually publish) a full biography of Saint Thorlak came, appropriately enough, on Ash Wednesday, 2018.  Another beginning!

It has become increasingly apparent that our trail is branching.  We are coming upon areas involving the larger community, and it is clear that we as autistics have both our own, distinct path and a common identity with the rest of the sojourners seeking the way to live in God’s love.  In short, we are all members of the Body of Christ.  The question has shifted from asking where we fit to wondering how the rest of the body interprets our being here.  We have the same Mission, with a different focus.

And so it is that we have taken the heart of the Mission of Saint Thorlak and placed it in the center of AUTISM CONSECRATED – our new website, and our new vision: to realize autism’s belonging in the Body of Christ.  Think of this as the same essential Mission from a new vantage point.  Over the next few weeks, we will highlight several of our website’s features, and then prepare to move forward once more on this yet-unbroken trail of autistic theology.

May this Ash Wednesday be, for all of us, another beginning.