A Lenten Daily Prayer Calendar to Realize Autism’s Belonging in the Body of Christ

Jesus, Re-member Us!

Lent necessarily evokes a certain imagery of journey: a voluntary withdrawal to a place of self-scrutiny to shed habits acquired from the world’s false theology of power, utility, and convenience, followed by a going forth with new resolve and better understanding of God’s intended Way. We often refer to this as a pilgrimage to the desert, evoking the literal path taken by Our Lord (and Israel before him) dedicated to prayer, self-emptying and preparation for the mission ahead. Desert life is likewise well-suited to pilgrimage, in that there are few places of concealment. The bright, hot sun starkly exposes who we are and what we carry with us, including aspects of ourselves and our habits which we might prefer stay hidden in our interior shadows; yet we soon realize the necessity of letting go of superfluous cargo if we are to survive the journey. Likewise, the desert’s vast stretches of isolation provide an environment free of diversions which might delay our reckoning. And then, the scarcity of resources reminds us unambiguously of our utter dependence on God, as well as the needs and interdependence of every member of the Body – both literally in our our own physiology, and figuratively in our reliance on mutual support within our communities.

For many autistic people, we are already in the desert. We are isolated, hungry, thirsty, and out of range of communication. We send signals, we explain our needs, we offer our services – but we are not seen, heard, or understood. It very much feels like involuntary exile without a clear or valid reason.

This experience is not unique to autistic people; indeed, the Church itself knows what it feels like to be excluded and isolated from secular society. In similar fashion, the Church communicates the Gospel message in many ways, yet is often not heard or understood. Nobody would argue that the Church is neither valued by contemporary society nor has much influence on public policy or cultural mores. It would be fair to say that the Church today finds itself in a very similar place as regards the secular world as autistic people. Wouldn’t it seem, then, that the experience of autistic people – who are very familiar with this sort of desert living – might be a great asset, and a source of wisdom, to the Church as a whole?

Unfortunately, autistic people are not only exiles from the cult of normalcy at large in the world. We are equally marginalized within the Church, the Body of Christ, by leaders who routinely ascribe to and apply the same standards as those held by that same secular cult of normalcy. A glance through our previous blog posts bears this out all too abundantly. To be fair, there are numerous parishes and dioceses who do take an active interest in supporting neurodivergent needs, and for these, we are truly grateful. We are not suggesting that the landscape is completely barren or bleak. We are, however, painfully aware that there are still many wounds yet to be healed, and many members of the Body who remain in exile from parishes, dioceses and communities who do not see the need to respond. It is to these communities we especially extend this invitation: Join us, this Lent, in our desert. And, to those who are already supporting neurodivergent members in the Body of Christ, as well as all our neurodivergent members far and wide: please, strengthen the Body for this journey with your prayers, too!

The following calendar serves as a map for such a journey. Each Lenten Day offers a prayer petition for pilgrims to draw ever closer to those of us who wait in hope for recognition, for reconciliation, and for our gifts and presence to be found acceptable by the rest of the Body.

On the Cross, the Good Thief – himself an exile from the community – made this prayer: “Jesus, remember me when You come into Your Kingdom.” This Lent, we ask Jesus to re-member us… to restore the exiled parts of His Body with circulation and nourishment and belonging.

Jesus promises “where two or more gather in My Name, I am there among them.” Be assured that this prayer calendar is being prayed by us here at Autism Consecrated. Whoever joins us in our prayer is united with us in Christ, and becomes a vital part of naming – and healing – the unfortunate effects of indifference, misunderstanding and outdated approaches to neurodiversity.  May we pray together: JESUS, RE-MEMBER US!

– Aimée O’Connell, T.O.Carm., and Rev. Mark P. Nolette

Further reading

Waldock, K.E. and Sango, P.N. (2023): Autism, faith and churches: The research landscape and where we go next. Autism and Faith, Vol. 20, No. 1. Retrieved on 2/2/24 from https://ojs.st-andrews.ac.uk/index.php/TIS/article/view/2578/1982.

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2024 Lenten Prayers to Realize Autism’s Belonging in the Body of Christ 

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2024 Lenten Prayers to Realize Autism’s Belonging in the Body of Christ 

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Praying for vocations?

It’s a safe guess that everyone reading this post will have seen, in one form or another, requests to pray for an increase in vocations to the priesthood, diaconate, religious and consecrated life. Rare is the Diocese with an abundance of priests, or the monastery overflowing with novices, anywhere in the world.

How is it, then, that a decent number of neurodivergent people feeling called to vocations are being turned away?  Worse still, how is it that many of these individuals are being welcomed and encouraged right up until the very moment they drop the “a” word (i.e., “autistic”), and then are stonewalled by a change of tone? Suddenly, the interest drops, the cordiality evaporates, and a businesslike manner takes hold: “We’re sorry, but after further consideration, we don’t think you will be a good fit.”

Excuse me?

If we can set aside the intense pain of such rejection without warning, what is it, objectively speaking, which makes an autistic person unfit for priesthood, diaconate, or religious life?

It’s an important question, considering that this is what we are hearing, again and again, especially from religious orders: autistic people need not apply.

In the absence of any obvious impediments, this rationale is tantamount to selective abortion. The same gravely flawed formula which pushes parents to end the lives of unborn children for the sake of avoiding anticipated hardships due to disability is being applied on a regular basis toward autistic people in the Church who feel genuinely called to religious life, and who respond with sincere intention.

Pray for vocations… but, only from among the fittest?

With apologies to Matthew 25, Our Lord is answering the prayer for vocations in great abundance, but He is being rejected by the very people sounding the call. He arrives in unmasked truth: vulnerable, humble, and open-handed. Rather than embracing Him at the door, we are yielding to the warnings of fearmongering experts, willingly allowing specters of pathology to eclipse the answered prayer before us. Calculating the risks, we turn Him away.

Aborting vocations. One after another.

How much longer, O Lord? How many autistic vocations are snuffed out by directors who refuse to trust that God knows what He is about when He chooses the people He chooses to work in His vineyard?

Pray for vocations? Not until we first pray for vocations directors, and for all the vocations obstructed by those who are threatened by vulnerability.

 

 

The Urgent Need: Autistic Mission

by Aimée O’Connell

Earlier this week, I referenced a recently published book intended as a field guide for bishops and seminary faculty in guiding and supporting autistic men discerning and responding the call to the priesthood.  As an autistic person, I feel the need to call attention to all that this book represents and its implications for the Church at large.  As a married woman, I am in no way qualified to speak about the priesthood or seminary formation – nor do I intend to.  However, as a member of the laity, I am charged with the same call to holiness and prayer as all my brothers and sisters in Christ.   I am the mother of a son who one day may himself feel a vocational call, if that is God’s plan for him.  I am a member of a Church begging for new vocations, more priests, pleading with Matthew 9:38 that the Lord will send more laborers to the harvest.  I may not be a seminarian, but I most certainly have a stake in the lifeblood of the Church – as is true for all members of the laity, men and women, all ages, all abilities, all neurotypes.

It does not matter who wrote this book or who endorsed it – by name, anyway.  This is not anything personal.  My observations are global, pointing to the big picture, and casting no blame on anyone in particular.  I pray that those reading this will follow likewise in seeing the system view rather than seeking out individuals.  We are all members of this same Body of Christ, with the same mission of actualizing the love of Christ in the world we live in.

In short: This book, Autism and Holy Orders, may fairly be characterized as a de facto policy statement of sorts, written in conjunction with and on behalf of Church leadership.  It makes public the working model which the Church holds on what autism is and how it is to be lived.  It bears the seals of approval by representatives of the Catholic hierarchy as well as those of Catholic religious orders, Catholic academia, Catholic seminaries, the Catholic diaconate and the secular field of clinical psychology.  This takes in a very wide swath of predominantly Catholic representation from on high, and one can assume that endorsements at this level trickle down through the ranks to each tier of leadership and staffing, eventually shaping the actions and opinions of staff and volunteers at even the parish level.

It is fair, then, to conclude that the prevailing approaches, attitudes, and beliefs of our Church toward autistic people are at least twenty years behind where the current and reputably acceptable understanding of autism is in the rest of academia, the healthcare and helping professions, and actual lived experience.  And this is a huge problem.

One need conduct very minimal research to see how autism has progressed from grossly misguided and stigmatizing treatment to much more humane, compassionate and accurate approaches informed by neuropsychology and the collective stories of actually autistic individuals.  The collective dialogue about autism has grown substantially and the global understanding is slowly coming around to see that autistic people thrive when allowed to be autistic, rather than following a pathology-driven model of symptom elimination.  Though the challenges of an autistic neurotype remain the same, contemporary approaches draw on personal assets rather than deficits and encourage autonomy through identifying those skills which would be most helpful to each individual.  Emotion regulation, distress tolerance, interpersonal effectiveness and coping ahead are skills that any person needs, but can also be tailored individually to fit the configuration of autistic people based on where they are finding the most difficulty. But, lest this paint too rosy a picture, I will add that it is still an uphill climb.  Meltdowns, burnout, shunning and stereotypes still exist all over the place.  The difference is that we as a collective society have more tools and better ways to frame things than we did twenty years ago, so there is better hope for better growth and thriving than in the darker days of autistic history.  People finally know that Rain Man is not the last word on, or the most accurate picture of, autistic life.

Enter, then, this book – published September 1, 2022, as a long-awaited guide for the Church in shaping and forming autistic men for holy orders.  In fact, once I started reading it, I realized the Church has waited TOO long to start looking at these questions.

Again, I emphasize that I read this book as a member of the laity who takes my call to pray for priests and vocations seriously, and as the mother of at least one person who may – who knows? – one day hear that call for himself.  And so it is that I speak up as one who is very concerned, who wants very much to support priests and vocations to religious life, and who recognizes that the pool of prospective members likely reflects the same demographics as we see in the mainstream population.  If we go with the one-in-44 estimate, debatable or not, we can safely assume we have several autistic people among us in every parish, in every diocese.   How many autistic people are called to religious vocations?  Only the Holy Spirit can answer that.  But it is our responsibility as fellow members of the Church to support all vocations, including those stirring in autistic individuals.

Thus, I raise the alarm.

Alarm? Isn’t that a bit melodramatic?  Not really.  Take a look at this review of the book by an autistic priest, and tell me afterwards if I am being dramatic.  Considering he was ordained 35 years ago, it is fair to deduce that he came of age during that time when autism was less understood and widely pathologized.  His words suggest that he has endured a lot of pain as a result.  While we can shrug and say that this was an unfortunate matter of people not knowing about autism like we do now, how can we reconcile that when this book – filled with the same pathologizing characterizations – was just published?

This needs to stop.

I have no answers.  I have no idea how to bring the Church up to speed so that she can work hand in hand with her autistic members in a way that is accurate, compassionate and truly nurturing of who we are.  I just know that if this book is commensurate with a policy statement, we’re in trouble.  I would feel the same way and make the same statements if a book like this came out in any other context – school boards, medical societies, secular academia – and I would issue the same call that I am now.

The Church is in the dark about autism. We, as autistic Catholics, need to be light.  We need to be visible.  We need to be who we are, as brightly as possible – because the Church is not seeing clearly.  The Church is stuck in the same rut that paints autism as a burden, a puzzle, something to be swept under the rug or passed over as quickly and deftly as possible so as not to draw attention to anything that looks or sounds different.  The Church is not comfortable with us as we are.  And this is not just limited to holy orders; ask any autistic person who has tried to participate in ministries, leadership roles, youth groups, sacramental preparation, faith sharing… and found them inaccessible, impenetrable and immutable.  Has nobody yet heard of universal design, or is it too scary to think of introducing something new at the institutional, diocesan, seminary or parish level?

We autistics have spent our lifetimes learning ways to grow and thrive and accept that non-autistic people do things differently.  We have been explicitly taught scads of social skills and social graces, scripts that help us come across in ways that supposedly pass muster so that we are taken seriously.

It’s time to model this for the Church.

It’s time to model compassion, active listening, comprehension, acceptance.  It’s time to model patience with a system that appears to us as lacking empathy, slow to understand and rigid in its ways.   But hey… we’ve been there.  We have both the experience to teach and the capacity to forgive.

If I may, allow me to paraphrase Ross Greene in closing: The Church’s stance on autism is challenging because it lacks the skills to not be challenging.  Skills do not just drop out of the sky; grace, however, makes all things possible.  As autistic Catholics, our mission seems clearer and clearer: We must be the light that is currently lacking. We must pray, be visible, and be the truth that makes up for twenty-plus years of systemic turning away and not seeing the pastoral necessity of understanding neurodiversity.

May God help us all in our mission.

Dr. Hahn: It’s not funny

by Aimee O’Connell

 

I have recently become aware of a book just published, Autism and Holy Orders, touted as a long-overdue resource for helping autistic men navigate the process of priestly formation, ordination and service in the Church.  I could not wait to start reading… until I hit the foreword by Scott Hahn.

Scott Hahn’s name always brings a smile to my face.  I have an entire shelf devoted to his books.  I have attended his conferences and speaking engagements.  I relish with guilty pleasure every single Dad joke he has made and refer many, many people to his writing, as I feel he has a gift in being able to explain Church doctrine in a way that is memorable, relevant and relatable to anyone.  I don’t know him personally, but it’s no exaggeration to say he is a part of my Catholic fabric.

The foreword made me gasp.

In an instant, this well respected, well recognized, NON AUTISTIC writer / speaker / scholar, to whom so many look for guidance and encouragement, dismissed the condition of being autistic as a fad, a marketing ploy, a source of confusion.  His flippant tone made me want to shrink, mask, camouflage, hide.  If he said this in one of his public talks, any autistic person in the crowd would wish to become instantly invisible.

He goes on to qualify his thoughts along the lines of some of his best and brightest students have had autism, and it pains him to see them suffer needlessly from a lack of understanding.  His departure from Dad jokes to full-on irony hit me like a hard smack in the face, and I’m still not laughing.

The rest of the book, I’m sad to say, followed suit.  You can read my review here.  On the one hand, it’s a consolation to know that a book like this has a very narrow target audience, so Dr. Hahn’s insensitivity won’t necessarily be felt by as many people as it might if he wrote this in a more mainstream book.  On the other hand, how many autistic people know what sort of attitude Dr. Hahn holds toward us, and perpetuates – knowingly or unknowingly – through his example?

Certainly, Dr. Hahn is entitled to believe and feel whatever he does.  It is not my place to police his comments.  However, it is within bounds to remind everyone who is not autistic that autism is no picnic.  We aren’t broken, yet people still look at us that way.  Alexithymia and sensory anxiety still make it very difficult for us to feel we are “enough” in the eyes of God, let alone the eyes of the Church.  Our intellect may know that God loves us as we are, but our bodies send signals of constant doubt which we have to consciously recognize and counteract if we want to maintain any kind of spiritual life.  It is a thousand times worse when our community sends us signals that feed this doubt (… such as when a renowned Catholic speaker belittles autism as a fad).  And, it’s amazing to see that even the people who consider autism a disability still speak about it as though they know everything about it, yet have zero knowledge of what it’s like from the inside, or any seeming desire to truly listen to those of us who talk openly about it it (… especially if they so quickly dismiss that as attention-seeking).

Dr. Hahn: It’s not funny.  I’m not laughing.  I pray that you may grow in compassion, offering Jesus’ prayer on your behalf: “Father, forgive him; he does not know what he is doing.”

 

 

First, Define “Leadership.”

When addressing the question of where autism fits into the Church, it has been said – and rightly so – that inclusion is not just a special project, but rather, should be something that flows from the top down.  For this to be authentic, then autistic people need to be included in the leadership of that community.

While this is easily said, it is not something that is easily attainable.  How so?

When we look at the question of how autistic people can have more representation in decision-making, the first step is to ask what is meant by leadership.  People normally think of the leader as the one on top, the one who is in charge.  That is one kind of leadership, but not the only one.  Let us use The Lord of the Rings as an example.  Aragorn is the one destined to be king.  He gradually moves into that role.  However, Gandalf also exercises a great deal of leadership though he is not a king or ruler in the usual sense.  As a wizard, he is an outsider – not man, elf, dwarf or hobbit; yet all recognize his wisdom and discernment, his prophetic leadership (if you will).

As a rule, autistic people do better in Gandalf’s role than in Aragorn’s.  But that requires a culture that values that kind of insight and prophetic speech and therefore values those who have such gifts.  In a parish, the pastor may ultimately be in charge, but others also exercise other kinds of leadership.  Deacons lead in one particular way.  The parish council is meant to exercise another kind of leadership as an advisory group to the pastor, assisting in forming the parish vision and in discerning how best to implement it.  All of this requires an openness from the pastor and the parish as a whole for collaborative leadership, and a focus on the individual gifts of each participant, rather than defaulting to pre-defined ideas of what “leadership” roles should be.

Autistic people are very well-suited to act as advisors and consultants to those in roles of parish and diocesan decision-making.  This is one way in which we can exercise a kind of leadership that is consistent with our autistic nature, valuing the gifts we bring rather than requiring us to conform to the system already in place (which, many times, excludes people like us).  A first step toward inclusion at the leadership level, then, is to invite autistic input at every level, starting with the roots – that our ideas and needs may permeate whichever entry point our comfort level may be, and be championed upward from there.

 

Support for Autistic Vocations

As part of Autism Consecrated’s vision “to realize autism’s belonging in the Body of Christ,” we are setting up a Vocations area with the intention of offering support and encouragement to autistic people who have been called to certain vocations on behalf of the Church: the diocesan priesthood, religious orders, consecrated virgins, and hermits.  The specific calling you have from the Lord gives you something in common with everyone else who shares that calling.  In accepting the calling, you are taking on a way of life that is already established and which comes with a number of expectations.  In all of this, you are on the same page as everyone else who shares your calling.

On the other hand, you are autistic.  You are not totally defined by your autism. Nevertheless, your autism influences nearly every aspect of your lives, including how you understand, respond to and live out your vocation in the Church.  Your autism gives you certain challenges that others around you may not understand – anxiety, a need for routine, or difficulties with social interactions, to name some examples. At the same time, your autism gives you gifts and graces that not everyone has or will understand, either.  You may find yourself unusually sensitive to the spiritual realm.  You may have an allergy to doublespeak or hypocrisy that may irritate others but shows your commitment to truth.  You may discover that the Lord’s power is made most evident in what others would call your weaknesses.

Even though you may have a strong commitment to your vocation and have friends who support your vocation, being autistic means that a significant aspect of your life is not readily understood by even those who are close to you.  You may feel isolated or unseen.

Here, we wish to offer a space where you can be seen and understood, as much as you wish.  We wish to offer ways by which you can see your autism more holistically and better integrate it into your vocation and your life as a whole.

This is a work in progress.  We may offer some resources or posts that we hope you will find helpful.  I can offer my experiences of negotiating my vocation as a diocesan priest and a contemplative while being autistic.  On the sidebar, you will see where we are setting up a forum for users to seek support from us and from one another.  We are open to any suggestions you may have as to what you would find most helpful from a page like this one.  Likewise, we encourage you to share this page with those you know who might find it helpful.

May Saint Thorlak, our Patron, guide us as we seek to help one another!

Peace in the Lord,

Father Mark Nolette