The Urgent Need: Autistic Mission

by Aimée O’Connell

Earlier this week, I referenced a recently published book intended as a field guide for bishops and seminary faculty in guiding and supporting autistic men discerning and responding the call to the priesthood.  As an autistic person, I feel the need to call attention to all that this book represents and its implications for the Church at large.  As a married woman, I am in no way qualified to speak about the priesthood or seminary formation – nor do I intend to.  However, as a member of the laity, I am charged with the same call to holiness and prayer as all my brothers and sisters in Christ.   I am the mother of a son who one day may himself feel a vocational call, if that is God’s plan for him.  I am a member of a Church begging for new vocations, more priests, pleading with Matthew 9:38 that the Lord will send more laborers to the harvest.  I may not be a seminarian, but I most certainly have a stake in the lifeblood of the Church – as is true for all members of the laity, men and women, all ages, all abilities, all neurotypes.

It does not matter who wrote this book or who endorsed it – by name, anyway.  This is not anything personal.  My observations are global, pointing to the big picture, and casting no blame on anyone in particular.  I pray that those reading this will follow likewise in seeing the system view rather than seeking out individuals.  We are all members of this same Body of Christ, with the same mission of actualizing the love of Christ in the world we live in.

In short: This book, Autism and Holy Orders, may fairly be characterized as a de facto policy statement of sorts, written in conjunction with and on behalf of Church leadership.  It makes public the working model which the Church holds on what autism is and how it is to be lived.  It bears the seals of approval by representatives of the Catholic hierarchy as well as those of Catholic religious orders, Catholic academia, Catholic seminaries, the Catholic diaconate and the secular field of clinical psychology.  This takes in a very wide swath of predominantly Catholic representation from on high, and one can assume that endorsements at this level trickle down through the ranks to each tier of leadership and staffing, eventually shaping the actions and opinions of staff and volunteers at even the parish level.

It is fair, then, to conclude that the prevailing approaches, attitudes, and beliefs of our Church toward autistic people are at least twenty years behind where the current and reputably acceptable understanding of autism is in the rest of academia, the healthcare and helping professions, and actual lived experience.  And this is a huge problem.

One need conduct very minimal research to see how autism has progressed from grossly misguided and stigmatizing treatment to much more humane, compassionate and accurate approaches informed by neuropsychology and the collective stories of actually autistic individuals.  The collective dialogue about autism has grown substantially and the global understanding is slowly coming around to see that autistic people thrive when allowed to be autistic, rather than following a pathology-driven model of symptom elimination.  Though the challenges of an autistic neurotype remain the same, contemporary approaches draw on personal assets rather than deficits and encourage autonomy through identifying those skills which would be most helpful to each individual.  Emotion regulation, distress tolerance, interpersonal effectiveness and coping ahead are skills that any person needs, but can also be tailored individually to fit the configuration of autistic people based on where they are finding the most difficulty. But, lest this paint too rosy a picture, I will add that it is still an uphill climb.  Meltdowns, burnout, shunning and stereotypes still exist all over the place.  The difference is that we as a collective society have more tools and better ways to frame things than we did twenty years ago, so there is better hope for better growth and thriving than in the darker days of autistic history.  People finally know that Rain Man is not the last word on, or the most accurate picture of, autistic life.

Enter, then, this book – published September 1, 2022, as a long-awaited guide for the Church in shaping and forming autistic men for holy orders.  In fact, once I started reading it, I realized the Church has waited TOO long to start looking at these questions.

Again, I emphasize that I read this book as a member of the laity who takes my call to pray for priests and vocations seriously, and as the mother of at least one person who may – who knows? – one day hear that call for himself.  And so it is that I speak up as one who is very concerned, who wants very much to support priests and vocations to religious life, and who recognizes that the pool of prospective members likely reflects the same demographics as we see in the mainstream population.  If we go with the one-in-44 estimate, debatable or not, we can safely assume we have several autistic people among us in every parish, in every diocese.   How many autistic people are called to religious vocations?  Only the Holy Spirit can answer that.  But it is our responsibility as fellow members of the Church to support all vocations, including those stirring in autistic individuals.

Thus, I raise the alarm.

Alarm? Isn’t that a bit melodramatic?  Not really.  Take a look at this review of the book by an autistic priest, and tell me afterwards if I am being dramatic.  Considering he was ordained 35 years ago, it is fair to deduce that he came of age during that time when autism was less understood and widely pathologized.  His words suggest that he has endured a lot of pain as a result.  While we can shrug and say that this was an unfortunate matter of people not knowing about autism like we do now, how can we reconcile that when this book – filled with the same pathologizing characterizations – was just published?

This needs to stop.

I have no answers.  I have no idea how to bring the Church up to speed so that she can work hand in hand with her autistic members in a way that is accurate, compassionate and truly nurturing of who we are.  I just know that if this book is commensurate with a policy statement, we’re in trouble.  I would feel the same way and make the same statements if a book like this came out in any other context – school boards, medical societies, secular academia – and I would issue the same call that I am now.

The Church is in the dark about autism. We, as autistic Catholics, need to be light.  We need to be visible.  We need to be who we are, as brightly as possible – because the Church is not seeing clearly.  The Church is stuck in the same rut that paints autism as a burden, a puzzle, something to be swept under the rug or passed over as quickly and deftly as possible so as not to draw attention to anything that looks or sounds different.  The Church is not comfortable with us as we are.  And this is not just limited to holy orders; ask any autistic person who has tried to participate in ministries, leadership roles, youth groups, sacramental preparation, faith sharing… and found them inaccessible, impenetrable and immutable.  Has nobody yet heard of universal design, or is it too scary to think of introducing something new at the institutional, diocesan, seminary or parish level?

We autistics have spent our lifetimes learning ways to grow and thrive and accept that non-autistic people do things differently.  We have been explicitly taught scads of social skills and social graces, scripts that help us come across in ways that supposedly pass muster so that we are taken seriously.

It’s time to model this for the Church.

It’s time to model compassion, active listening, comprehension, acceptance.  It’s time to model patience with a system that appears to us as lacking empathy, slow to understand and rigid in its ways.   But hey… we’ve been there.  We have both the experience to teach and the capacity to forgive.

If I may, allow me to paraphrase Ross Greene in closing: The Church’s stance on autism is challenging because it lacks the skills to not be challenging.  Skills do not just drop out of the sky; grace, however, makes all things possible.  As autistic Catholics, our mission seems clearer and clearer: We must be the light that is currently lacking. We must pray, be visible, and be the truth that makes up for twenty-plus years of systemic turning away and not seeing the pastoral necessity of understanding neurodiversity.

May God help us all in our mission.

Dr. Hahn: It’s not funny

by Aimee O’Connell

 

I have recently become aware of a book just published, Autism and Holy Orders, touted as a long-overdue resource for helping autistic men navigate the process of priestly formation, ordination and service in the Church.  I could not wait to start reading… until I hit the foreword by Scott Hahn.

Scott Hahn’s name always brings a smile to my face.  I have an entire shelf devoted to his books.  I have attended his conferences and speaking engagements.  I relish with guilty pleasure every single Dad joke he has made and refer many, many people to his writing, as I feel he has a gift in being able to explain Church doctrine in a way that is memorable, relevant and relatable to anyone.  I don’t know him personally, but it’s no exaggeration to say he is a part of my Catholic fabric.

The foreword made me gasp.

In an instant, this well respected, well recognized, NON AUTISTIC writer / speaker / scholar, to whom so many look for guidance and encouragement, dismissed the condition of being autistic as a fad, a marketing ploy, a source of confusion.  His flippant tone made me want to shrink, mask, camouflage, hide.  If he said this in one of his public talks, any autistic person in the crowd would wish to become instantly invisible.

He goes on to qualify his thoughts along the lines of some of his best and brightest students have had autism, and it pains him to see them suffer needlessly from a lack of understanding.  His departure from Dad jokes to full-on irony hit me like a hard smack in the face, and I’m still not laughing.

The rest of the book, I’m sad to say, followed suit.  You can read my review here.  On the one hand, it’s a consolation to know that a book like this has a very narrow target audience, so Dr. Hahn’s insensitivity won’t necessarily be felt by as many people as it might if he wrote this in a more mainstream book.  On the other hand, how many autistic people know what sort of attitude Dr. Hahn holds toward us, and perpetuates – knowingly or unknowingly – through his example?

Certainly, Dr. Hahn is entitled to believe and feel whatever he does.  It is not my place to police his comments.  However, it is within bounds to remind everyone who is not autistic that autism is no picnic.  We aren’t broken, yet people still look at us that way.  Alexithymia and sensory anxiety still make it very difficult for us to feel we are “enough” in the eyes of God, let alone the eyes of the Church.  Our intellect may know that God loves us as we are, but our bodies send signals of constant doubt which we have to consciously recognize and counteract if we want to maintain any kind of spiritual life.  It is a thousand times worse when our community sends us signals that feed this doubt (… such as when a renowned Catholic speaker belittles autism as a fad).  And, it’s amazing to see that even the people who consider autism a disability still speak about it as though they know everything about it, yet have zero knowledge of what it’s like from the inside, or any seeming desire to truly listen to those of us who talk openly about it it (… especially if they so quickly dismiss that as attention-seeking).

Dr. Hahn: It’s not funny.  I’m not laughing.  I pray that you may grow in compassion, offering Jesus’ prayer on your behalf: “Father, forgive him; he does not know what he is doing.”

 

 

Three Simple and Meaningful Ways for Parishes and Churches to Promote Autism Awareness in April (And Beyond)

(Note – the graphic is designed primarily for Catholic viewers and readers, but the text here has been adjusted to apply more universally to any Christian worship community. Feel free to share in your own circles!)

Three Simple and Meaningful Ways for Parishes and Churches to Promote Autism Awareness in April – And Beyond!

  1. Plan one homily or sermon acknowledging God’s wisdom in creating neurodiversity: noting the role of autistic people in the Body of Christ, dispelling myths many people still have about autism, and setting the tone for the parish as a place that recognizes and cherishes its neurodiverse members – seen and unseen, heard and unheard.

 

  1. Consider offering a sensory friendly worship service as part of the regular services one weekend… then, consider how that could become a recurring option throughout the year.

 

  1. Host a brainstorming session for autistic people in the church, asking what would make it easier to participate in church events, sacraments, leadership and ministry. Plan this so that input can be received in writing or pre-recorded as well as in person, to include input from non-speaking persons.

 

What is – and is not – on our Youth Ministry Resource Page

The following text comes directly from our Youth Ministry and Catechesis link, which may be found here.

A Message From Autism Consecrated’s Co-Founder, Aimée O’Connell:

I know that many people who click through to this page will be looking for concrete resources.  Having been a youth ministry volunteer myself, I’m guessing you are here because you have a tried-and-true youth ministry program which reaches a fantastic group of young people – and yet, there are still some who are not participating in group activities or connecting well with their peers, and you suspect autism might be a factor.  Perhaps you are looking to intentionally welcome and invite the autistic youngsters in your parish to participate.  Maybe, too, there are one or two who have brought their autism to your attention, and you would like to know what can reach and help these kids in particular.

I need to start off by letting you know that you are not going to find answers or solutions on our website.  It is my belief that the ideas you have and the programs you are using are exactly right, exactly as they are.  Furthermore, it is also my belief that any program or activity designed solely for autistic people will either fall short or miss the mark entirely, which is why we do not offer such resources here.

How is it that I have such strong convictions, especially considering that I have a master’s degree in school psychology and extensive background in working with, and developing accommodations for, autistic youngsters?

For starters, I am autistic myself, and so I’m what I would call “insightfully biased.”  I also know, from many years of experience, that autistic people benefit far more from people getting to know them than from pre-packaged curricula and activities.  While we can speak generally about autistic tendencies and what might or might not be helpful, we autistic people don’t always match the assumptions others make about us, even those made in the best of intentions.  We often feel unknown because our needs and preferences fall outside the norm and are hard to guess… and, because we have a difficult time letting people get to know us.  Pre-designed activities may be just fine if they are a good fit for our personality and processing style, so long as you remember there is no single autistic personality or processing style.

In the bigger picture, youth ministry is often a difficult fit for autistic people for practical reasons relating to our sensory needs and social anxiety.  Group activities are hard, period.  They can be (but are not always) confusing, unappealing, loud, too fast, and difficult to connect to the concept or object lesson you’re trying to teach.  Many of us like the idea of faith-sharing but not the games.  Others like the games but not the vulnerability of faith-sharing!  Some of us would like to dive more deeply into our faith than youth ministry is able to go.  And some feel an enormous amount of pressure trying to be “faith-filled” and “have fun” at the same time, when we have been drilled for years that we need to behave differently in each scenario.  (These are not just hypotheticals; I have heard these comments, and plenty more, from autistic teens who would love to participate but find it too confounding).

What else might keep autistic teens from attending?  Group activities require a lot of social energy, which is often in short supply among autistics.  If we have already had a long day where most of our “socializing and behaving properly” energy has been spent, we might not have a lot left for youth group.  Or, if we only have one day when we can recharge between all the other things we do, we might decide it’s too much to plug youth group into that day.

So, what can you do, if you want to reach out to autistic kids and engage them in youth ministry?  Above anything else, GET TO KNOW THEM INDIVIDUALLY.  Meet with them on their terms, and do so enough that you really have a sense of who they are, what they like, and what they don’t like.  Get to know their processing style, their relationship style, their prayer and spiritual style.  Are they introverts or extraverts?  Do they like to pray silently, or out loud?  Do they enjoy music?  Do they enjoy singing?  What ways do they learn best – by reading, listening, visuals or activities?  Do they have particular interests or questions about the faith?  What ideas do they have as to what they would like to see or do to share their faith?  Do they enjoy service projects?  Individually, or with others?  It is not just autistic people who can benefit from questions like these.  Most people will be able to engage better when there is a balanced blend of  visual, academic and experiential spirituality!

What about those who are introverts, who need alone time to process information, who feel especially anxious in group settings?  The richness of our faith allows for many ways to meet these needs and still foster community.  As a professed Third Order Carmelite, I can vouch that prayer is a powerful act of service and a meaningful way to engage with the community, even if this is done by one’s self.  Consider inviting those with higher social anxiety to pray for each week’s youth group theme, or to be someone who takes intentions from the members of the youth group and dedicates time to pray for these needs, on their own schedule and terms.  Consider pairing prayer partners between autistic and nonautistic youth – because this, too, is faith sharing in the community, and, where two or three gather in Jesus’ name, He is there among them (Matthew 18:20).

Can nonverbal autistics be included too?  Absolutely.  Taking the time to get to know someone who has difficulty interacting can feel intimidating and challenging, but be patient with yourself.  Most of us speak and interact so automatically that we do not stop to consider other ways of just-being with one another!  Once we do, it is surprising to realize how many ways exist to share the love of Christ.  Engaging less verbal and nonverbal youth will yield good fruit for the entire community, and once you get to know them well, it will be much easier to see how they would like to be included.

While I can’t promise answers or solutions, I would love to offer insights and ideas that are compatible with the programs that you already use.  I believe it is very possible to create space within the existing community to welcome and encourage people on the autism spectrum – be they youth, adults or volunteers – by both recognizing the wonderful individuality of each person and considering ways that typical fellowship and faith sharing formats may be made easier on the senses to allow the quieter, more reflective participants to thrive.

If you have specific questions or topics that are of particular interest to your ministry area as pertains to autism, please use our contact form.  I am also very happy to pray for you and your ministry!  I would love to hear from you.

Fixed: Email subscribers glitch

A note to email subscribers: We are attempting to fix the glitch which has prevented our recent notifications for new blog posts from sending.  If you have not received our latest notifications, we direct your attention now to our two most recent posts:

April: A Puzzling Month 

Autistic Egypt

Additionally, we invite readers to see Fr. Mark Nolette’s guest blog post on the National Catholic Partnership on Disability webpage: Autism Appreciation: Lessons from Horton Hears A Who

Thank you!
Aimee O’Connell – Autism Consecrated

A Prayer for the Autistic Souls

Tap here for AUDIO in English on our YouTube channel

All Souls Day, 2020

 

Heavenly Father,

 

We commend to Your loving care

all the autistic souls who have gone before us:

 

Those whom we knew well;

Those we knew only from a distance;

 

Those with whom we worked, as helpers and as colleagues;

Those who were our neighbors;

Those who were our classmates;

Those who stand out in our memories

as quirky, different, eccentric and odd;

Those who were accepted and welcomed;

Those who were marginalized,

bullied,

mocked,

and turned away;

 

Those who communicated easily with others;

Those who communicated without words;

Those whom others found difficult to reach;

Those who were overwhelmed by the sensory demands of their environment;

 

Those within our own families

who succeeded;

who struggled;

who knew that they were autistic;

who wondered why they were different;

who were accepted with love and patience;

who were difficult to connect with;

 

Those who died alone

in group homes;

in mental institutions;

in hospitals;

in nursing homes;

in isolation from others;

in homelessness;

 

Those who died without the benefit of being understood for

who they were;

why they were different;

what their actual diagnosis was;

what their actual capacity for love was;

what their interests were;

what their intellectual capacity was;

what gave them joy;

what brought them sadness;

all that made them who they are;

 

For all autistic souls who have gone before us:

 

May they rest in Eternal love, acceptance and peace,

and may their memory inspire us

to love more, understand better,

and cultivate patience

with ourselves, and with one another.

 

In the Holy Name of Jesus, we pray,

Amen.

 

 

 

Call For Submissions

Autism Consecrated Resource Library Call for Submissions

April, 2020: Autism Consecrated is pleased to announce an open call for submissions for publishing on our website’s Resource Area, social media and video channels.

Our goal is to invite people from across all communities, worldwide, to share their insights, ideas and testimonies in an effort to create a comprehensive resource library accessible by anyone with an internet connection. Whatever your background may be, if you have thoughts toward achieving Autism Consecrated’s vision “to realize autism’s belonging in the Body of Christ,” we would love to share them far and wide! Read on to learn more about the goals of the conference and what we look for in submissions.

Types of Submissions

As every person has their own personal communication strengths, so too are we looking for a diverse array of submissions.  The manner in which you communicate best is the one we are looking for.  Audio, visual, video and written submissions are all welcome.

Who May Submit Presentations

The short answer is, “anyone!”

That said, here are some more specific examples of who might be interested in participating.

Autistic People and their Supporters

There are few presentations as valuable as those which come from direct, firsthand expertise.  In fact, it would be impossible to build a resource library to address the needs of the autistic community without having its foundation in the autistic community itself!  What are your spiritual needs?  What are the practical challenges to being autistic Christians?  What ways does autism enhance your faith and that of your community?

Key Players in Faith Communities

What have you seen that affirms – or, would affirm –  the value of autistic members in our faith communities?  How can we foster such initiatives in our own and in other communities?  How does the perception of the community encourage autistic people to fulfill their potential in the Body of Christ, even when autism at times appears to interfere with this purpose?

Clergy and Administrators

What are the successes, as well as the challenges, you have seen in meeting the spiritual needs of the autistic community?  What supports do YOU need in serving the autistic community?

Scholars, Theologians and Essayists

How do we reconcile autism’s gifts and challenges with Sacred Scripture, Church Tradition and the theology of disability?  How can we discuss this in ways that include, accept and invite people who may feel unworthy or incapable of participating in worship and community faith activities because of autism?

What we are looking for

Diverse topics

While there will be some overlap expected, we are hoping to get a variety of responses from many perspectives so that our library can truly become a resource for the wide, wide community.

Practicality and positivity

Submissions should reflect hope, encouragement and possibility.  While there is a time and a place for addressing grievances, our library is intended to go beyond identifying problems into generating and offering solutions.

The Gift of your Expertise

Autism Consecrated is a website, not a business.  While we are glad to have this be a mutually beneficial opportunity for professional exposure, and we are aware that many contributors have legitimate reason to promote their talents, the primary reason for contributing to our library is to offer your particular expertise as a gift to others and other communities.  If promotion is the main thrust of your submission, please consider a more appropriate venue to publicize your work.

Respectful Language

“Realizing Autism’s Belonging in the Body of Christ” is the banner under which our website resides.  Although we are Christian in our beliefs, we respect everyone of all abilities, backgrounds and traditions, and we ask that submissions show that same respect to one and all.  We reserve the right to edit or refuse submissions that do not consistently uphold the inherent dignity of every person as a child of God.

Selection Process

We will review submissions in the order in which they are received, and strive to notify you of selection status in as short a time frame as circumstances allow.

Format Details

Submissions may be in the format which best reflects your communication style, so long as they are generally coherent and able to be accessed by the worldwide online audience.  Length is at your creative discretion.  As a general rule, the more efficiently you convey your key message, the better the chances of reaching your intended audience.

Questions?

If you have any questions, please email us at autismconsecrated@gmail.com and we will respond as soon as we are able.

Ready?  Set?  SUBMIT!  All submissions become the property of Autism Consecrated and must be accompanied by a signed release form in order to be considered. 

Submit your contribution and signed release form to:

autismconsecrated@gmail.com

Thank You!

-Aimée O’Connell, Co-Founder of Autism Consecrated

Subscriber alert: ACAT Migration In Progress

A note to our subscribers (and all readers!) – the Annotated Catechism for Autistic Thinking, or ACAT, is being moved from the old site to our new home.  Please bear with us as these posts are placed, as this is going to hit like a wave in your inbox.  This is a one-time phenomenon which will allow future Annotated Catechism posts to integrate with our regular weekly thoughts from here on out.

Thank you for your patience!