Author: Autism Consecrated

  • Autism As Mission

    Autism As Mission

    We have written previously that autistic people are less likely to attend Mass than non-autistic people (e.g., our 2023 post, “Raise Your Hand If You’re Not Here”).

    Our Daily Prayer for Autism’s Belonging for the Second Wednesday of Lent reads like this: “We pray for our autistic members who are not able to participate in Church liturgies and activities. May our autistic members be genuinely missed when absent. May we prayerfully consider what the barriers might be to their participation, and what the community can do to help address and relieve those.”

    Which barriers might come to mind?

    • Sensory load
    • Health (both mental and physical)
    • Energy level (vs. exhaustion)
    • Quality of sleep (vs. chronic sleep deficit)
    • Executive functioning
    • Access to transportation

    While each of these is relevant, if we are to be completely honest, we need to go further and acknowledge that – consciously or not – the community’s attitude toward neurodiversity is often the biggest and most difficult barrier. People may say outwardly that they welcome and encourage people of all abilities to come to Mass, but there remains a deep interior skepticism that autism is anything more than pop psychology’s attempt to stylize laziness and apathy toward decorum. These attitudes are not only grossly incorrect, but also do nothing to build up the Body of Christ. If anything, autistic members are isolated and wounded by this barrier more than all the others combined.

    Ask any autistic person: If we were able to overcome such barriers as these through our own efforts and willpower, we would do so. Trying harder is not enough – and not within our grasp. Telling ourselves not to feel [exhausted, overwhelmed, anxious] is as useless as telling our cars to keep going when the fuel gauge reads “empty.” Our capacities and limits are what they are, and pushing past them is harmful, period. Those who encourage us to do so are operating on faulty, outdated, and disproven information.

    Some have become so accustomed to the idea that merit is earned by acting well that they confuse patience and compassion for “special treatment.” But accommodations for autistic people are no more indulgent (or optional) than the “special treatment” shown by, say, bandaging and resting a sprained ankle… or by using supplemental oxygen when scuba diving.

    Autistic people really do want to be present and participate. If we can’t remove the barriers for ourselves, what can we do?

    Trust that we serve God best as our authentic selves, needs and all.

    Diverting our energy from trying to live past our means starts by trusting God’s wisdom. Our capacities and limitations were designed, with purpose, by Our Creator. Trust that God intends some members of the Body of Christ to process at a different pace, to be deeply affected by what we see and hear and taste and ponder, and, yes, to need patience and assistance from others as a result of our body’s design. Trust that God calls even those of us whom the world writes off to be disciples. Believe that the fruit of this discipleship is cultivated in part by the extra time, extra space and extra understanding which will allow us to be present and contribute.

    It requires this same trust to ask and expect the community to help us in our needs, and that is how offering our autism – by just being our authentic selves –  becomes mission work, even when that  mission brings us to confront the situations which  find us:

    – misunderstood, unseen, or unheard by our community

    – unaccommodated, despite repeated asking

    – unable to participate, especially when large groups are our only option

    – asking more questions than people would like

    – overwhelmed and dysregulated, even when we are doing the best we can

    In other words, the mission of being autistic includes challenging the way our communities respond to differences and disabilities, and living in such a way as to break the stereotypes perpetuating the misunderstanding and isolation which keep us from fully realizing our vocations as disciples.  When we focus on suppressing and hiding our autistic traits, we miss out (and so does the entire community) on what happens when we put that energy instead into being who God made us to be – which St. Catherine of Siena says will set the world ablaze with God’s grace!

    Lord, let us be a sign by which stereotypes can be challenged. May our communities appreciate why we wear ear defenders and tinted glasses to Mass, and why we might sit in a separate place with additional sensory supports.  May our fellow parishioners experience God’s grace when lowering the lights, reducing the volume, and providing space which helps autistic people engage much more fully in worship. May our autistic discipleship be a source of grace and blessing to our communities.

    Lord: Hear our prayer!

     

  • A Word On Our Daily Prayers For Autism’s Belonging in the Body of Christ

    A Word On Our Daily Prayers For Autism’s Belonging in the Body of Christ

    Those who are praying along with our daily intentions this Lent will notice that each day’s prayer examines an aspect of neurodiversity which many may not have considered. We are seeking to shift the stereotyped sense of autism as problematic symptoms and misbehavior toward a deeper realization that autistic expressions are very human, very functional ways people respond and attempt to cope when our processing system is flooded. Most people know what it’s like to feel overloaded. The difference is, autistic people’s processing systems reach capacity at a higher frequency, and overload when we are asked to keep pushing. Our bodies absorb every bit of data from our surroundings at once, filling all available processing slots quickly to capacity without the benefit of extra time to sort it all out. As with the famous chocolate factory scene from “I Love Lucy”, we do what we can to keep up, but pretending we are fine only makes things worse. Unless that conveyor belt slows down or we get the support we need to finish, we know how this is going to end. Except – for autistic people – we’re not laughing. More like, it is devastating, each and every time. It is exhausting. It is humiliating to have to ask for help, all the time… and, it’s even more so when we are met with those who think the way to help us is to shape our behavior for us. “Try harder! You can do it if you really apply yourself!” – No. We can’t.

    But here’s what we want to convey: Any person’s capacity to participate in anything – including social activities, learning environments, and worship services – requires the ability to process information and engage with others. When our sensory systems are bombarded with more input than we can process, autistic or not, our bodies shift from relaxed participation to high alert.  If we do not take time and space to catch up with what we are already processing, our fight/flight/freeze reflexes start acting like circuit breakers, systematically shutting down extraneous processes (such as social graces, small talk, and creative thinking) as a last-ditch effort to keep our processing afloat. Most of us can recall a time when we felt frazzled by too many people speaking at once or too many demands coming in at the same time. If someone approaches us right then with a bit of unrelated conversation or unsolicited advice, we can well imagine what our response might look like… and, most neurotypical people would make plenty of allowance for why this is reasonable. Why, then, is it unreasonable when autistic people experience this (which we do)? Hint: It’s not unreasonable. It just happens more frequently, and more intensely, because our loads are constantly full, and traditionally, people have been told to “help” us by making us struggle. These prayers are intended, in part, to show the other side of this.

    The crucial point to remember: Neurodivergent minds are flooded with simultaneous processing tasks, all the time. The way we look, sound, act, and cope, is a reflection of how well – or not – we are able to keep up with those processes at any given moment.

    Corollary: The degree of assistance, patience, and accommodations we receive from others around us helps determine the ease with which we can participate and engage with others.

    Autistic people deal with this all day, every day. It is not something that can be trained out of us. We can’t be cajoled into doing better. We look and act the way we do because we are at capacity, all the time, even when other people are not.

    Why do we take such deliberate care in phrasing our intentions? In hopes of helping the wider Church see that autistic traits are not moral failings, and are not conquerable with the right attitude. Autistic traits are expressions of the same Body of Christ in which we are all members. Our experiences are more intense, and our capacities are reached sooner and more frequently than neurotypical members. The point to remember is that our needs are the same human needs as the rest of the Body – not subhuman needs, as original models of autism would lead us to believe, and not willfully lazy, self-absorbed, oppositional, or anti-social.

    The extra time, extra space, extra patience, and gentler environments which autistic people utterly need to participate in ordinary things of life are arguably conditions which benefit anyone. Who among us does not feel a bit of relief when someone shows us empathy and helps us out when we are struggling? Which then begs the question: why are so many people so reluctant to allow these things? Why is slowing down, making things easier, and softening the sensory environment seen as “giving in” instead of giving the Body an oasis of desperately needed neurological rest, where all of us – including and especially autistic people –  can heal?

     

    Lord, Hear Our Prayer!

  • Lenten Resolutions

    Lenten Resolutions

    by Aimée O’Connell

     

    With the season of Lent just up ahead, I would like to offer Autism Consecrated’s take on Lenten resolutions. Boiled down, these would be something like this:

    • Learn about my neurobiological infrastructure
    • Live within my neurobiological means
    • Patiently, politely, cheerfully refuse* to exceed those means
    • Consecrate my neurodivergence to God, offering Him all that I am, that I may bear witness to autism’s belonging in the Body of Christ

    (* This phrase, “cheerfully refuse,” is a direct nod to the title used by Leif Enger in his 2024 novel. That wording captures how I strive to face confrontation when trying to be faithful to my needs, and I express my sincere gratitude for his giving the world that phrase.)

    Awhile back, I was asked in an interview what advice I might give to autistic individuals and families who are seeking to strengthen their connections to God and their faith communities. My response from then fits very well with the way I recommend forming our Lenten resolutions.

    First: Understand what autism is, and what it is not.  Learn about autism from neuroaffirming sources and from fellow autistic people. 

    Second: Consider that the autistic neurotype is part of God’s design, and contemplate the intentionality of that being part of our lives.  How have the autistic aspects of our lives shaped us, and how have they shaped the people around us? 

    Third: Consider consecrating our autism to God, that He may lead us to where we will be most fruitful, exactly as we are.

    Fourth: Be forthright with our needs. The more comfortable we are with our limitations, the more others will become comfortable supporting them. It takes mutual, voluntary humility to admit when we don’t know what to do but are willing to support one another in figuring that out together. 

    Fifth: Never forget that God loves us and knows our limitations. So long as we sincerely desire to grow ever closer to God, we cannot let Him down or disappoint Him simply because we are neurodivergent or are struggling to keep up with the obligations and demands on our processing. 

    Sixth: Keep the conversation going as long as it takes for the people in our parishes to better understand and support its autistic members of all ages, not just children.  And: Remember that starting a “conversation” does not necessarily require speaking or depend on traditional communication. It was St. Francis who said we do well to preach the Gospel at all times, but use words only when necessary… and it was the one-person-at-a-time example of St. Thorlak, not his words, which comprised his legacy and led to his canonization. Being authentically and cheerfully who we are, autistic and all, is mission work to the rest of the Church.

    Once again this year, Autism Consecrated is offering Daily Intentions for Autism’s Belonging in the Body of Christ as a season-long deep-dive into various aspects of neurodivergence, seeking in prayer to build better understanding of and support for neurodiversity in our parish communities. These daily reflections serve as a prayer for the Church, but can also be a means of learning more about our neurobiological infrastructure, in line with the Lenten resolutions suggested above. The Daily Prayers for Autism’s Belonging are free for individuals and groups (including parishes) to pray, print, download and share.

    Likewise, The Scriptural Stations of the Cross for Autistic People by autistic Catholic priest Fr. Mark Nolette are based on his firsthand experiences and a desire to unite the gifts and challenges of neurodivergence to the suffering and redemption of Jesus. This devotion may be accessed directly on our website or downloaded in print and audio formats (English).

    And then, the Prayer to Consecrate Autism is also on our website, free to access and download and pray for ourselves or on behalf of someone close to us.

    Let us all pray that the upcoming season of Lent will be fruitful for all of us, in the ways we need that most.